Thank you once again for praying so long and so faithfully for Pastor Esposito, our church, and our family. As I have said many times, it means more to us than you could ever know.
We had an eventful May. It was my husband's and my 29th anniversary. I reached my 50th birthday. Our daughter Joanna graduated from high school on the 29th. The graduation was a bit emotional; while at the same time helped us to thank God once again for the trial. Joanna did an awesome job giving the salutatorian speech, and I saw such maturity and growth in her. We used the phone to allow her to address her dad as he watched the graduation. Many tears… but through the tears I praise God for the strength and faith He is growing in our children's lives because of the trial. It was one of those glimpses at God's purpose I mentioned in the last update. (You can see her speech here.).
Since the last prayer update, Pastor had both physical and occupational therapy, for now both have ended. Praise the Lord for allowing him to have those weeks of therapy. He has made some progress through it; and has had the opportunity to demonstrate some abilities we may not have thought of working on. It has also helped to loosen him up some more, enabling better movement. I requested prayer that the standing frame would continue, and thankfully the order has been written for the standing frame twice weekly. Thank you for praying. I took lots of notes from therapy and got lots of new ideas even watching others there, and have many new ways to work with Pastor. We also were given printouts including new exercises to work on various areas as well. Here are some examples of things on which we've worked:
• Rolling a ball back and forth on the table using either hand
• Tapping on the matching card with his index finger
• Moving arms/hands back and forth in a wiping motion on the table
• Standing and exercising head and neck – moving them at request
• Pulling pegs out from a peg board
• Filling in a circle with a marker, trying to write (he switched the pen from the left stronger hand to his right hand on his own.)
• Many new exercises like turning the hand at the wrist in rotating motion, etc. (for the first time he reached up with a tissue to wipe his own mouth during one of the sessions)
• Many more, all of which we will continue to do on our own. Then later they will check his progress on all of these.
Each and every task is very slow and obviously takes a lot of thought and effort. Many times there is a long delay, then a response. Often he does what is requested once or twice then stops. Pray for Pastor's strength and energy. Yesterday, it was neat just that he picked up his right arm to try to cover a sneeze. For some time he has been doing so with his left arm. Today he did the wiping motion much better with the right arm. Sometimes (without specific permission) we walk Pastor to a nearby pharmacy. Sunday I did so, and it was the first time that he seemed to be alert enough or have movement enough to sort of look around a bit on his own instead of me getting his attention and asking him to look at this or that.
Praise the Lord for continued improvement—step by step, each of which is a big miracle in itself. Please keep praying God will wake up what needs to be awakened, and connect what needs to be connected between his body and brain. We still need a miracle from the Great Physician. Also, please pray again for the capping and eventual removal of the trach. I haven't really pushed for it since so much effort was going into therapy. Most likely it will be done when I personally ask for it to be done. Now that therapy has ended, and the schedule is more in my hands. I plan to ask daily after he's back in bed from the chair, and done with most of the various new exercises and activities. I know both will tire him greatly. Please pray that he adjusts quickly to capping and he won't be too stressed, that the muscles needed to draw in the air through his mouth will gain strength to work again, and that the brain will tell them to do so.
This morning it was very neat that Pastor was trying to speak with his voice again. It was sad though that he's trying so hard, and I am not getting it. I called the RT in and he said it again several times, but we couldn't understand. "I want…", but we couldn't get the last word. Please pray he keeps trying without being discouraged, and that we can get what he wants to say. And of course pray for his strength and ability to speak more forcefully and distinctly.
Thank you once again.
The Esposito Family
NEW PRAISE REPORTS AND PRAYER REQUESTS. Recently, we had a care plan meeting at the nursing center with social services department from the facility, the head of nursing, one of the respiratory therapists, the pulmonologist, who also is a general doctor, and me. This meeting is a review of all of his recent health records, medications, etc. and an opportunity to share concerns or ask questions. I am going take some time to give some details from the meeting, since many folks ask related questions – so if you prefer to skip to the brief praise/prayer requests at the end of the update, please feel free to do so.
I requested the anti-seizure medication to be reduced to what it was prior to his being ill a couple weeks ago and having had what potentially was a seizure. The doctor is not comfortable with reducing it for now, so it will stay as is. He did tell me that it's the most mild of seizure medications, and that it has very few side effects and should not affect alertness. He said if I feel it does to bring it back up. But, he's actually been more alert recently.
We talked about potentially giving him some herbal supplements for the endocrine system. A nutritionist recommended it, and coincidentally I attended a brain injury conference session on the same topic (from a medicinal, not herbal perspective). The point was that following brain injury, most often there are deficiencies of the hormones produced by various parts of the endocrine system. Theoretically, if these could be detected and corrected it should improve function in areas controlled by these. The doctor said that he is not comfortable with the herbal supplements. He said that there is no way to measure how much you are administering, nor to know if a complication arises (seizure for instance) whether it is from the particular herbal remedy (which he did say act as drugs) because it's not testable. He said at least he can test blood levels for what he is presently giving him and adjust as needed. What he did say is that he is very willing to test for these deficiencies and try correct them with standard medicine.
We talked with the doctor about a "capping" trial. (This is removing the trach at the outer neck, and putting a red cap on the opening.) He approved, and said we are in the best place to try this. Capping causes the patient to breathe both in and out the mouth. (Pastor hasn't drawn breath in through his mouth in 19 months.) Then the RT's place oxygen in the nose and monitor oxygen level and heart rate. I'd had the discussion a few days earlier with other staff. The discussion was very round about, and I had really struggled with it that day. At first the conversation was that typically they don't experiment – they do it when they feel the patient is ready and they do a three day trial and then remove the trach. They also don't usually do it for patients who still are suctioned (Pastor is about three times per day they said – though maybe once a day or 3 times a week I might ask for it during the day). They also said that he still has secretions. I asked why – and they said because the trach is a foreign object. So it's really a cycle of the trach producing it, causing suctioning, and the danger of those secretions causing pneumonia or air blockage in a patient whose muscles aren't yet strong enough if the trach isn't there to suction. Then in the middle of the conversation, they said that maybe it can't hurt anything to try and if he doesn't do well they just stop. I asked if they could tell me specifically that they think he's ready, not just it can't hurt to try and that I don't want them to do it only because they think I want it. I went away to think and pray for a bit and had decided not to. When I returned, they enthusiastically agreed that we should try it and convinced me to try. He handled about 20 minutes until his heart rate went up too much. They felt that was a really good first try. They said some patients are obviously unable to handle it right away. When an RT tried it a couple days later, it only lasted a few minutes and he said, "We'll try again." To describe how it looks, it's like he's fighting for air under water. He looks so distressed in his eyes, and he's breathing fast and hard. It's pretty frightening—to him, and to me! But the positive is that his oxygen level stayed good. The Speech therapist came in and said that the muscles in the throat required to breathe like that just don't have strength after all this time of unuse (our prayer is that this will help build those muscles). What the doctor said is that we can just try once or twice a day and gradually work up to it. I appreciate this, as it's not standard but they're willing to do it. That's what we did with the PMV valve, and gradually he has come to where he wears it almost all day.
I asked in the meeting what the requirements are to qualify for therapy again. (The therapy that I've referred to in our recent updates is of a different type, and paid for out of pocket.) They said that it is evaluated regularly, and requires improvement (the head of therapy says "functional improvement"). So I read to them the following list of things my husband can do.
• Turn and hold up his head
• Move any finger on either hand at request
• Move his left leg and arm at will
• Is beginning to move his right side more
• Respond yes or no by a nod or shake, thumbs up, or blinks
• Recognize and distinguish letters
• Potentially read – as his eyes go back and forth at the Scripture placed before him
• Laughs appropriately in conversation
• Can squeeze a ball in both hands, wave, try to shake hands
• Hold tightly to a PVC pipe I brought and hold and pull some
• Help with his exercises sometimes
• Bend his arm, open and close both hands at request, move his wrists as asked
• Push back or pull in
• Can move his tongue to the left or right and open and close his mouth intentionally
• He can chew the tooth swab when asked on either side, and swallow
• Blow the party toy
• Lip words
• He tries to get voice out
So the doctor ordered a re-evaluation with physical therapy, occupational therapy, and speech therapy. The head of physical therapy saw us outside and asked my husband to do this and that and said, "We'll start tomorrow." The speech therapist came in and said it would be more profitable for her to come after doing the capping for a while. The occupational therapist saw him the next day. It was neat. He tried to clap his hands, wipe the table (and that was using his right arm – though he could pull in but not out), and he brought a cloth all the way to his mouth, which was a first without help. They experimented with a pen in his hand, and it seemed he was trying to grasp and move it. They stood him up in the standing frame as well. Our hope is that though therapy typically lasts only 10 days, he will be allowed to continue to stand with the CNA program 2-3 times per week.
Thank you for all of your prayer for standing by us both our faithful people of Pacific Baptist Church, and those who keep updated via this website or posts that others spread around by other means. It has meant the world to us.
I thought that I'd give a quick update for the past week. The neuro-muscular therapist came four days this week. I was extremely encouraged at my husband's alertness and response. He was very "with her" as she asked him to participate in many ways. One way that was encouraging to me was that she asked him to try to shift his weight on the left side where he sat, and it was obvious that he tried. To me this said that he has feeling and the beginning of some control in the trunk of his body. Also, when I took him inside in the chair following the therapy on Friday, I took off the arm of his wheel chair to use as a "rail" and asked him to hold on with both hands (I helped put his hands on) and I told him to help me pull him up into a sitting up position. He held tightly as I pulled and he did sit up on the edge of the wheelchair, not letting go. I would have expected the right hand at least to slip off, but he held on and we did it several times in a row. Another positive was that past times she came, my husband was so exhausted that he'd mostly sleep the rest of the day. This week, he did sleep some; but also had much awake time where we were able to do other things with him still.
Also, I wanted to share just a funny story. One day this past week after I'd just shaved Pastor. I told him, "You look so good! I need to bring a mirror so you can see yourself. People mean it when they say you look younger. On the other hand, I am turning 50 this week! And I am sure looking like it, don't you think?" To which he nicely shook his head no slowly back and forth about 3-4 times. And I laughed and told him he's so nice to me that that was a nice gift!
Thank you for your continued prayer that means so much to us.
It has been a month since the last update. The first couple of the weeks were very uneventful. In fact I must admit I was tempted to be a bit discouraged. I was asked about updates, but didn't feel that I had anything new to report. (Maybe the strong emotions of a son getting married and a daughter going to the mission field, though both good emotions, made my husband need a couple weeks of rest.) Anyway, I was encouraged by a CD that one of our families gave me by the RU Joybell Singers. One song was especially encouraging, "Hold On." One verse reads, "Hold on through the dark times, hold on though the way seems too long. My grace is sufficient for thee…" But what was more encouraging about the CD was that most of the songs sung on the CD refocused my attention on God's goodness and faithfulness, and all He has done for me. I was reminded that God truly has been very good to me.
Now over the last couple weeks, very much has happened. Let me share some of these steps:
Though we do many things to try to "help" Pastor improve, we know that he is in God's hands, and we ask God for His will. We know that any steps forward are from the hand of God, giving him the capability of taking the steps, so we PRAISE HIM for all of these and continue to ask for a miracle.
Thank you so much for praying long, and for continuing to read our updates. You are a blessing to us!
It has been a calm couple weeks following the wedding, fine arts competition for the three younger children, and three of the children going to visit our team in Cambodia. My daughter Susanna who is twenty-two will be staying in Cambodia for a while and serving with the team there. Susanna will be staying with my brother-in-law and his wife and daughter.
Since the last update--praise the Lord--I was able to hear Pastor Esposito's voice! This was the first time for me. It was only once, but he is still trying. He tries to speak and is able to form the words (though he isn't initiating speaking much). Please pray that everything connects together. Pray also for strength/energy. Pray that he doesn't get discouraged. There were a couple weeks where I felt maybe he was discouraged and just seemed tired a lot. Now he seems back to "normal" in trying to progress again little by little.
We are presently in the midst of our building giving campaign. I wanted to share the testimony of God's provision that I was asked to write. At the end I tell of God providing for me to have the neuromuscular therapist come see my husband again. It's not that I couldn't have figured out how to do it some way or another, but I wanted to see God's hand in it. Here is the testimony, which I pray God receives glory from my sharing:
During times like this (building campaign time), I can't help but be emotional. Our building is a vision Pastor Esposito, my husband, believed with all his heart was from God to help further the vision of reaching our Jerusalem, Judea, and the uttermost parts of the world. Bro. Johnny asked me on a couple of occasions, "You don't have to answer this, but did Joe (he called his brother Joe to me) ever one time imply that he thought we shouldn't have gotten into this building program?" And each time I answered, "Never, not once." He believed with all his heart it was a vision from God to reach more people for Christ here and abroad."
Last Saturday, Bro. Meyers did a wonderful job with our Building Kick off, and my heart was burdened again, and I longed to do more to see our building complete. I barely could contain my emotions as he spoke, as in my heart I said to the Lord, "I want to be a part, but I have nothing to give. You will have to as Joe used to say, (I call him Joe to God.) 'give through me.'" I have NOT stopped giving what Pastor and I committed to give weekly before he became ill, and also an increase on that amount last building campaign; but I want to do something more for the cash offering. The truth is I don't have it. The next day, I took Pastor on a walk, and prayed while I pushed him in his chair as we often do. We prayed again that God would provide something I don't have that I can give. I told Pastor about having spent quite a bit for the kids to go to Cambodia, and tires for the car as I'd had a blow out on the freeway a few weeks ago from waiting too long to replace my tires (The tow man was surprised I was able to make it safely to the right shoulder.).
Add to this, the fact that our van was sitting in the driveway in need of much repair. I told Pastor that I was simply going to retire it! Sarah had been driving the day before on the busy 710 freeway to Monterey Park (actually following the building kick off meeting), and we still don't know exactly what happened, but the tire was torn up, wheel well off, electrical wiring was hanging out and exposed as if it had gotten tangled, and the bumper was cracked. Something got caught on something – that's all we know. Praise God He kept Sarah safe, she made it to the left shoulder just before the shoulder ended, and at that moment the car died completely. So this added to my feeling of being unable to give.
That Sunday night after walking and praying with Pastor, Bro. Ros preached about miracles. He made mention of a miracle of a car over a cliff on a youth activity, and I remembered mine and Sarah's close calls recently and God's protection. He IS taking care of us. Somewhere in the sermon, he made mention of God being able to provide a miracle for us to give toward the building. Again, I prayed, telling the Lord I want to give, but don't have anything to give and would need one of those miracles.
That Thursday, Bro. Pineda text me to ask if I would write a building testimony. I felt the same emotion again. I wanted to ask, "Can you wait until I have a testimony to give?" But I knew the right answer was, "Yes, sir." I continued praying.
That afternoon when I got back to LB from Pastor's place I first went to the house. My van was moved forward a bit, but I didn't think too much of it. Then Jen told me that her parents had put tires on the van. Bro. Robert had also reconnected the electrical wires, and found that the engine started fine. (Bro. Jesse also came and gave stitches to my bumper and ordered the part that fits above the tire.) As I pulled out to come over to the finance office, I wept and thanked God for His care and provision. When I arrived at the desk in the office, there was an envelope on the desk. It said, "Brad and Diana Quackenbush". If you receive Bro. Johnny's e-mails, you may remember that Brad was Jeremy and Joshua's little league coach when they were small, and we had been praying for his health. Brad went to heaven recently. Because I had e-mailed Diana both while he was in the hospital and after he went to heaven, I expected to open a thank you letter. In a card, Diana wrote that while praying for me on Tuesday morning, the Lord had laid it on her heart to send me a check. The check was in the amount of $1000. Wow, God used a new widow who was praying for ME. I closed the door and cried and thanked the Lord for showing Himself real to me again and for allowing me to receive my first $1000 for the building offering (after a tithe, of course). (It seems that just at the time I most need to see God's hand in a visible way, He shows Himself real to me.)
God has done so very many miracles from the start of our building to now from the city meeting, to ground breaking though a nationwide economic down turn to where we are today. He has taken us step by step, never once has the building stopped. We have come a long, long way. It hasn't been easy, but it really is HIS BUILDING. I believe if we trust HIM and pray He will give us many more miracles and allow us to finish. I can't wait to see how HE provides more for our family to give this year. My boys already started selling candy over spring break to be able to give while also praying for God to provide in other ways.
Let's all pray that God gives us many miracles so that we can see HIS building built!
P.S. I had also prayed the same week that if God wanted me to have a specific therapy for Pastor that He would provide specifically $300 that was needed so that I would know it was an answer to that prayer. When my son came home from Cambodia Friday, he gave me an envelope with a note from the Keo's written on the outside. When I opened it; it contained exactly 3 $100 bills.
God was showing me one more time that I can trust Him and that He can provide through prayer. "Let your requests be made known unto God" personally and for His building. Don't think that people are often passing me money that is not the case. These were specific answers to prayer, from a God Who wanted to show HIMSELF strong and real to one of His weak children that was just willing to go ahead and ask and to provide for me and for His building.
Thank you once again for your prayer, folks who encourage us through notes, gifts, e-mails. Again, it means a lot to us!
PLEASE KEEP PRAYING FOR A MIRACLE. God is still able, if it be His will, as able today as on the first day. We want only His will and glory whatever that may be. And for now we realize we are exactly where He wants us. This poem recently was an encouragement to me:I asked for strength and God gave me difficulties to make me strong.
Greetings once again. Thank you for your faithful prayer and to the many who have e-mailed, sent cards, etc. You are a great encouragement to our family.
For our son's wedding, we were able to use FaceTime connected to a monitor in the hospital's conference room to allow Pastor to watch the wedding live. My daughter-in-law Jennifer's parents, Robert and Jane Ramirez, graciously stayed with him during the wedding until we were able to get there. After taking pictures and a bit of fellowship, the entire wedding party came to Pastor's place still dressed in wedding clothes, spent some time with him in the activity room, and took a few pictures. He was very alert and seemed to enjoy it. Cindy's parents from China came that day and also earlier in the week. Her dad was assured that he is "there" after spending some time with him.
I think I mentioned previously that we were going to try to purchase an eye tracking device that would allow my husband to communicate with his eyes. It's like typing with the eyes. You could design your own pictures that he can look at and it would capture what he is focusing on and speak for him. We thought that if he could communicate better, we might be able to progress faster. Our church people graciously took up an offering for a tilt in space wheel chair, but the insurance ended up paying for most of it, so we plan to put the money toward this device if it seems he is able to use it. The first day when they came, he was so sleepy he couldn't keep his eyes open—much less track and focus—so we rescheduled. The second time they were able to capture his glance and calibrate his eyes when they had a large circle that moved and he followed it on the screen. However, when we tried to get his focus on the keyboard screen or pictures, his eyes moved too much. In other words, he couldn't keep his eyes still long enough on each letter to capture it. The lady said that the eyes are muscles, and just like the rest of his body, they need to be strengthened. She e-mailed some of the pictures and said we could design our own. She told us to specifically work on staying focused longer in different parts of the vision field. So this has been one thing we have been working on more recently. We have also been using scrabble letter cards to have him look left or right at specific letters, and moving the tv to different spots while playing Baby Einstein type videos where he can focus and track specific objects like a balloon. Please pray for improvement in his ability to not only track, but also maintain still focus by strengthening the muscles in the eyes.
Another thing we have been working on is keeping in the PMV valve for extended times. Some days are good and he keeps it in most of the day. Others he struggles. This morning he was laboring very much while trying to breath through it, so we took it back off. The respiratory therapist said it seemed that he was trying to breathe out the trach instead of out his mouth and nose, but there is only a small amount of space thus the labored breathing. He asked if I wanted to keep trying, and I asked what he thought. He said only if I was staying by his side to watch. When the therapist put the PMW back in, he continued the same. We decided to take it out and try later. He also has seemed the last couple days to have a bit of confusion when trying to project a sound or blow out, which is supposed to strengthen the vocal chords. It seems he is trying to make sound while breathing in rather than out. Please pray that his vocal chords become strong, that he has enough strength to use them, and that he is coordinated physically and mentally to put it all properly together. He has not spoken audibly since we last reported that he did, though he has tried here and there. He lips sometimes, but more often when asked to do so. Yesterday morning was the first time in a bit that he'd tried to say (lip) something to me on his own. (Though I couldn't read it still, which makes me so sad, I just keep telling him not to quit trying.)
Praise God that Pastor's overall health has remained good. We are giving him fresh vegetable juice daily, along with a reduced amount of the formula feeding he was on already. In a few weeks we will do lab work to see how it has made a difference in iron, cholesterol, sugar, etc. levels. I hope it will be like Daniel in the Bible's test!
Please pray for continued wisdom in various decisions. I often consider moving him closer to home, but am not sure I want to risk the move to a completely different place. Pray for continued progress as well. And as always, please pray for God's glory and that we'd have opportunity to be a blessing to others because of this trial. My son Daniel was able to present the gospel to a patient here this past week. I awoke the other night thinking of several folks who had recently passed away here, and of how short life is. Don't pass up any opportunity the Lord gives us to share Heaven with any. Please keep praying for a miracle!
Pastor's family would love to know if you're praying! Your name or e-mail will not be added to any ministry mailing list. This is not a fundraiser. This is simply to let the Espositos know you are standing with them in prayer.